The Stakeholder Event was held on 20th October, Portcullis House Westminster. The main aim of which was to:

• Announce that all newborns are now offered screening for sickle cell disorders and
• Publicise the development of guidance for the care of children affected by sickle cell disorders and the need to develop a managed clinical network for sickle cell disorders

The event was hosted by the MP Sadiq Khan and chaired by Most Reverend and Right Honourable Dr John Sentamu, Archbishop of York.
More information about the event is available in pdf format from the link bellow:

Stakeholder Event

London Conference
(March 2003)

• Conference Programme
• Presentations
• Report 1 - Care Pathways for Antenatal and Neonatal Haemoglobinopathy Screening in London
• Report 2 - The Provision of Genetic Counselling Services for Haemoglobinopathy Clients in UK Genetic Centres

Neonatal Laboratory Workshop (Quality Management/ Standards
(April 2002)

• Programme

Clinical workshop
(Feb 2002)

• Programme
• Report
• Report Appendices

Technical Workshop - Antenatal Screening
(Nov 2001)

• Programme
• Report

International Workshop
(July 2001)

• Summary of key findings
• Report

'Ethnic' Question Workshop
(May 2001)

• Report
• Project Brief 1
• Project Brief 2

Speakers from the International Workshop Left to Right: Back Row Dr AL Anagnostou (Greece), Prof K Ohene-Frempong (Ghana), Prof G Serjeant (Jamaica), Dr J-Nelio Januario (Brazil), Dr P Lane (USA), Dr K Pass (USA), Prof J Eckman (USA), Front Row Dr Allison Streetly (UK), Dr H Granda (Cuba)