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UK Screening:
DIPEx
Research:
SHIFT: Screening for Haemoglobinopathies in the First Trimester
Training and Education
Centres:
PEGASUS Network
Continuous Professional
Development (CPD):
To
view and download education resources such as leaflets, study day
templates, training CD, flowcharts and general information on screening
for health care
professionals, please visit the CPD
website.
Diagnostics:
 the
Accessible Publishing of Genetic Information
Voluntary Sector:
Sickle Cell Society
UK Thalassaemia Society
International Programmes:
Sickle Cell Disease Association
of America
Professional Organisations:
Sickle
Cell & Thalassaemia Association of Counsellors (STAC)
UK Forum on Haemoglobin Disorders
Useful Networks:
Public
Health Observatories of England
NW London Haemoglobinopathy Managed Clinical Network
Publications:
Antenatal
and neonatal haemoglobinopathy screening in the UK: review and economic
analysis
Screening
for sickle cell disease and thalassaemia: a systematic review with supplementary
research
The
NHS Plan: A plan for investment A plan for reform
The
Genetics White Paper
The Management of Sickle Cell Disease from US National Heart Lung and Blood Institute
National Library for Health
Annual evidence update on antenatal screening for sickle cell and thalassaemia, and newborn screening for sickle cell disease 2006/07
If you would like the NHS
Sickle Cell & Thalassaemia Screening Programme's website to link
to your organisation's website please contact The
Webmaster
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