The NHS Sickle Cell & Thalassaemia Screening Programme* Steering Group was established in October 2001. The membership has representatives from stakeholders with interests in the haemoglobinopathy screening and future development of services.

The aim of the Steering Group is to shape and develop policy and be involved in all the key decisions for the Antenatal and Neonatal Haemglobinopathy screening programmes. The decisions will be reported to the National Screening Committee (NSC), specifically the Antenatal and Child Health Subgroups. The Steering Group will meet four times a year for the duration of the implementation programme.

* Formerly the NHS Haemoglobinopathy Screening Programme

For further details about the Steering Group, please click below:

Membership

Terms of Reference

Meeting Dates 2008:

Steering Group
Laboratory Subgroup
Training and Education Subgroup
DH Clinical Services Development Group
Project Board Meeting
Regional Antenatal Coordinators' Meetings
Quality Assurance Subgroup Meeting
Public Outreach Steering Groups

Steering Group

11 March 2008 - Friends House, Euston, London
9 July 2008 - Bishopthorpe Palace, York
30 Oct 2008 - Friends House, Euston, London

Laboratory Subgroup

14 Jan 2008 - Friends House, Euston, London
14 May 2008 - Friends House, Euston, London
16 Oct 2008 - Friends House, Euston, London

Training and Education Subgroup

1 April 2008 - Friends House, Euston, London

DH Clinical Services Development Group

13 Feb 2008 - Capital House, London Bridge
17 July 2008 - TBC, London
11 Nov 2008 - TBC, London

Project Board Meeting

29 Jan 2008 - Derby Medical Scool

Regional Antenatal Coordinators' Meetings

19 March 2008 - Manchester
19 June 2008 - Manchester
18 Sep 2008 - London
3 Dec 2008 - Manchester

Quality Assurance Subgroup Meetings

25 Feb 2008 - Friends House, Euston, London
19 May 2008 - TBC
7 Oct 2008 - TBC

Public Outreach Steering Groups

28 April 2008 - Friends House, Euston, London
24 Nov 2008 - Friends House, Euston, London